Down Syndrome Foundation R.O.C

Thank you for your love

I think the Down Syndrome Foundation is good

This is my work place,

Professional Helping Organization

This is the headquarters of a non-profit organization specially set up for patients with Down's syndrome, providing various services and consultations related to Tang Baobao's early treatment, functions, vocational training, employment, and so on.

The surface fiber is bright, the interior is filthy, and the pseudo-charity group that advocates individual worship. What is the purpose of being a charity? Is it a person who is in charge of the institution or a special person with a disability in the name of the service? I am afraid that even the core figures of the agency's power do not know.

Love is not long-winded moon cakes are delicious Recommended ?

My child is stunted, and what society taught me was "endless waiting". The child is currently three years and four months old. Because of a month of premature birth, he stayed in the neonatal intensive care unit. He has been frail since childhood. Before the age of one, he was often hospitalized three times because of a cold that turned into acute bronchitis. When I was one year old, I was sick to see a doctor, and there was a risk of a doctor seeing a doctor. Based on the interaction between the child and him, I suggested that I take my child for evaluation. After a series of examinations in the Department of Rehabilitation and Neurology, it took half a year for the therapist to complete the evaluation and receive the report, confirming that his overall development was delayed. I firmly believe in the expert health education "Don't miss the golden treatment period"! To this end, we decided to let my husband support the family alone. I suspend my work and devote myself to my son's golden treatment period. I actively take him to morning therapy classes, and in my daily life outside of class, I diligently review the advice given by the therapist. training advice. From the beginning to the present, I still feel how bumpy the road to early treatment is. In the beginning, my son was hospitalized on average every two classes due to his frailty. Later, when he encountered an epidemic, the whole world raised the alarm and suspended early treatment. Until the age of two, when we moved to Linkou, the epidemic was under control; the report was overdue, and the joint diagnosis and therapist evaluation were repeated again, and the overall development was still slow. For occupational therapy, we found the "Love Angels Association" in Linkou District. As the social worker mentioned, the government does not want "duplication of resources", so children cannot be allowed to attend classes in hospitals or clinics. I don't know how this allows my child to receive early treatment for language, function, and physics. So I joined Facebook-related groups and found that most parents reported that hospitals and clinics were also full, and most of them sought out self-funded treatment centers in order to "can't miss the golden treatment period". To the hearts of parents all over the world, no matter how hard the day is, it will be deeply rewarding because of the progress of the children and the professionalism of the therapists. Just when all this was on track, the social worker told me a few years ago that New Taipei City would re-divide the area and they would hand over the service to the unit in charge of the new district. Waited for three months until March 5, when a social worker surnamed Zheng from the Down Syndrome Foundation visited the home. During the interview, it was mentioned that the resources provided by the government were limited, so services were not provided to cases with "duplication of resources"; As the previous social worker explained to me, I asked her about the definition of "resource duplication". Social worker Zheng replied, "As long as you receive treatment in a hospital or clinic, you cannot use our services." I reconfirmed: "Is the self-funded sanatorium a part of the duplication of resources?" Social worker Zheng replied: "It doesn't count" After a few questions, she came to a conclusion, Tell me, "Mom, that's enough for him to pay for himself! I'll go back and discuss with the director to see if this service can be offered to the child." I was full of question marks: "Isn't it continuing the service?" Social worker Zheng replied, "The resources provided by the government are limited. There are still many cases that are more serious than children. They can't walk after going to primary school. Your children will also have patrol teachers when they go to kindergarten in the future!" I have more question marks: "Last time, the kindergarten teacher told me that even if there is an auxiliary teacher in school, I can't stop the early therapy course, because the school's auxiliary teacher does education and treatment is different!" At the end of many question marks, Social Worker Zheng said that he would go back to discuss with the director. On 3/7, social worker Zheng called back and told me: "This service can be provided, but I'm not sure when it will be provided. Because the resources provided by the government are limited, teachers' classes are full..." If time is so important to a child with a developmental delay, why, wait or wait for an uncertain answer? Just wait until a clear sentence "the resources provided by the government are limited". I hope that government units will solve the problem from the root and truly see the needs of children with developmental delays.